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  5. My 8 week old has a condition known as Renal Tubular Acidosis......

My 8 week old has a condition known as Renal Tubular Acidosis...... Rss

I've done alot of research and liaise with paed doctors but wonder whether anyone has knowledge of this kidney defect???
We discovered he had the condition at 5 weeks of age....he was failing to thrive, weight loss, vomiting, diarrhoea, dehydrated (althought still urinating) extremely mottled skin (looked like a broken china plate glued back together) and hardly slept. He now is on a sodium bicarbonate solution daily and his weight and blood are checked each Monday. So far so good!

''''Chelle

I don't have any knowledge of this defect but I am all ears if you want to talk about it and teach me.

How is he going now?
Hello I'm writing because I've been living with RENAL TUBULAR ACIDOSIS TYPE 1 all my life. You need a renal kidney specialist, depending on where you live you may have to travel to a big city Hospital.

I take potassium chloride tabs daily
And sodium bicarbonate daily.
There's no cure that I've heard of.

The way I understand it is the tubules inside the kidneys are damaged so you need medication to help those kidneys to WORK properly.

I have to take medications my whole life. I really hope your baby does not have the same issues that I deal with.

Always thirsty probably drink up to 8 litres of water a day and of course go to toilet a lot.
You will need blood test regularly to make sure potassium levels stabilise and to get the correct dosage of potassium because I know if I go without the potassium for even one week I can end up in ICU being pumped full of potassium.

I only joined up to respond to you.
I'm 34 years old and as far as I know was born with this condition.

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