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Mumma of bubba with down syndrome Rss


Hi!
My name is Sunni and I have 4 boys, Kohen 6, Chayse 3 nearly 4, Leo 2 and Isaac 10 (stepson) and my one and only baby girl Aaliya 3 1/2 months. Aaliya was diagnosed with downs syndrome when she was 2 weeks old and I thought my whole world was falling apart, however with time, i have grown to realise that i wouldnt have life any other way now.I count myself lucky that there were no other major health concerns for her with all other tests performed coming back with good results. I feel blessed and wonder if there are many other mums in similar situations. I never had any of the tests that can identify ds early as i was not considered high risk. At 25 years of age i didnt even really think much about it. but i am so glad that i didnt because i have no idea what i would have done with the results, a decision im glad i never had to make. Within the last 3 1/2 months my life has had a complete change around and now we are heading in a slightly different direction, but i just couldnt imagine what life would be like without her.?


Congratulations on your wonderful family. Im not a mum with a child with Downs, but on of my closest friends has downs and she is the most wonderful, caring, perfect person ive ever met in my whole life! If everyone were even a quarter as nice as Sarah, the world would be a much better place. She certainly makes my life shine.
sorry don't have anyone with downs, but have a high needs child... welcome to huggies wink
welcome to huggies first off all.. there is a lady that writes a wonderful blog about her family, and she has a story that is similar to yours... her blog is [url="www.enjoyingthesmallthings.blogspot.com"]enjoying the small things[/url] i would suggest starting at the start here if your new page i enjoy reading her blog and i hope you will too

Congratulations on your wonderful family. Im not a mum with a child with Downs, but on of my closest friends has downs and she is the most wonderful, caring, perfect person ive ever met in my whole life! If everyone were even a quarter as nice as Sarah, the world would be a much better place. She certainly makes my life shine.

Thanks! I do believe u when u say how wonderful she is as Aaliya has the most amazing way of making people fall in love with her without even trying. =) ?
[quote name='renastar' date='23 March 2011 - 06:59 AM' timestamp='1300859964' post='2949508'] welcome to huggies first off all.. there is a lady that writes a wonderful blog about her family, and she has a story that is similar to yours... her blog is [url="www.enjoyingthesmallthings.blogspot.com"]enjoying the small things[/url] i would suggest starting at the start here if your new page i enjoy reading her blog and i hope you will too [/quote] I will have to have a look. Thankyou smile

sorry don't have anyone with downs, but have a high needs child... welcome to huggies wink

Thankyou. Its crazy the way life makes ur world do a little backflip and u find urself in a different but still wonderful direction. All the best! smile

Hi!
My name is Sunni and I have 4 boys, Kohen 6, Chayse 3 nearly 4, Leo 2 and Isaac 10 (stepson) and my one and only baby girl Aaliya 3 1/2 months. Aaliya was diagnosed with downs syndrome when she was 2 weeks old and I thought my whole world was falling apart, however with time, i have grown to realise that i wouldnt have life any other way now.I count myself lucky that there were no other major health concerns for her with all other tests performed coming back with good results. I feel blessed and wonder if there are many other mums in similar situations. I never had any of the tests that can identify ds early as i was not considered high risk. At 25 years of age i didnt even really think much about it. but i am so glad that i didnt because i have no idea what i would have done with the results, a decision im glad i never had to make. Within the last 3 1/2 months my life has had a complete change around and now we are heading in a slightly different direction, but i just couldnt imagine what life would be like without her.?
Congratulations on the birth of your beautiful baby girl Aaliya. She is perfect and I bet her brothers adore her! My middle son (2 1/2 yrs) happens to have Down Syndrome but if it wasn't for all the appointments (to ensure he is healthy & enhance his abilities) most of the time we would forget. He is a gorgeous child & we have the same hopes for the future for him as for his brothers (ie happiness, longlasting happy relationships, & fullfilling life). In some areas his development has been slower than his "typically developing" brothers but at some things he has been more advanced. Like all kids he has challenges at times that need to be met but so do his brothers (in fact he probably has less challenges than his brothers). We continued to be amazed and enthralled by him as we are by his brothers. Enjoy the journey with your beautiful family.
Hi there

I am a 25 year old single mum who has a 1 year old daughter with Down Syndrome smile I was in your position 12months ago not only was I dealing with becomeing a single mum but I was thrown into the deep end finding out I had a child with Down Syndrome like you I thought my world was falling apart I felt as though I was a terrible mother. I look back now and this what in the world was I thinking?!?!?! My daughter is the most precious little girl I have ever met and she entices everyone she meets. She has an awesome smile and an even better smile that just melts my heart everyday.
Like you I never thought that being the age of 25 I need to even think about anything like this though I was never asked if I would like the testing it would never have made a difference. After the initial shock of it all life has been great. We go to a specialised playgroup every week since she was 5 weeks old (the teachers just love her) we also see specialist from Disability service (physio, OT, speechy) and we are currently still trying to get her ears sorted out. Other than the fact that we have extra activities every week she is just like any other child she is developing beautiful babbles along like you wouldn't believe has been crawling for a couple of months now (which as you would know is awesome smile ) I am so proud of my little girl and I always will be she is the most important part of my life and I wouldn't have life with out her!!! Would love to chat anytime you are up for it!!!
I too am 25 with a daughter who has down syndrome. She is 6mths old now. During pregnancy they found that my baby had a heart defect and I was told that because of the particular defect that there was a 60% chance that it was DS. I chose not to have tests done because it wouldn't have changed anything. It was then diagnosed at birth and it took 2weeks to get her home from hospital. I seriously don't know how u dealt with with finding that out 2weeks after birth!! I take my hat off to you smile
I absolutely love my girl to bits but have been struggling with my emotions lately. I know she's a gift but I keep finding myself looking at what could've been. I try not to but for some reason I just keep going back there. My friends and family are so supportive and they all adore her, but I can't help but feel they have no idea what I'm going through.
How do u guys stay so strong?
I too am 25 with a daughter who has down syndrome. She is 6mths old now. During pregnancy they found that my baby had a heart defect and I was told that because of the particular defect that there was a 60% chance that it was DS. I chose not to have tests done because it wouldn't have changed anything. It was then diagnosed at birth and it took 2weeks to get her home from hospital. I seriously don't know how u dealt with with finding that out 2weeks after birth!! I take my hat off to you smile
I absolutely love my girl to bits but have been struggling with my emotions lately. I know she's a gift but I keep finding myself looking at what could've been. I try not to but for some reason I just keep going back there. My friends and family are so supportive and they all adore her, but I can't help but feel they have no idea what I'm going through.
How do u guys stay so strong?
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